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worried mom

bonn250
  • By bonn250 · New reply yesterday at 1:42 pm
  • Journal · 6 replies
  • my 7 year old daughter has had fevers every4-6 weeks since she was 4.5 years old she also has swollen lymph nodes,mouth ulcers,rashes,& joint pain. This last 7-10 days. The Drs. think it might be hibernian ...

tomorrow: Explore Inn Electric Circuits/ Circuitos Eléctricos

BKuz
  • By BKuz · Posted yesterday at 12:41 pm
  • Discussion in General · 0 replies
  • Fun activity learning about how Electric Circuits work! Explore Inn: Electric Circuits Tuesday Jan. 6th 5:00pm by the bistro Circuitos Eléctricos martes 6 de enero 5:00pm cerca del bistro ...

Explore Inn: Electric Circuits/ Circuitos Eléctricos!

BKuz
  • By BKuz · Posted yesterday at 12:40 pm
  • Journal · 0 replies
  • Fun activity learning about how Electric Circuits work! Explore Inn: Electric Circuits Tuesday Jan. 6th 5:00pm by the bistro Circuitos Eléctricos martes 6 de enero 5:00pm cerca del bistro ...

New group in Inspire: The National Body Challenge

Brian
  • By Brian · New reply yesterday at 10:50 am
  • Journal · 12 replies
  • I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...

Programs and Activities - Jan 2009

ManagerofFun
  • By ManagerofFun · Posted December 30, 2008
  • Discussion in General · 0 replies
  • Hi Everyone. Hope everyone has had a nice holiday. Here's what's HappenINN at The Inn this coming month.... Special January Activities January 8th 5pm Arts INNplace Music: Music & Movement with Musical ...

No Learn Inn on Dec. 30th

BKuz
  • By BKuz · Posted December 30, 2008
  • Journal · 0 replies
  • FYI- there will not be a Learn Inn on Dec. 30th Have a Happy New Years and I hope to see you next week! Bridget ...

Merry Christmas and Happy New Year

Viola-Mars
  • By Viola-Mars · Posted December 25, 2008
  • Journal · 0 replies
  • Happy Holidays, Children's Inn Community. I was on the radio today! Please visit this site to see me in action: http://www.wtop.com/?nid=25&sid=1558565 Enjoy your holidays! Viola-Mars, Resident Therapy ...

Trip to the National Christmas Tree on Monday

BKuz
  • By BKuz · Posted December 24, 2008
  • Journal · 0 replies
  • Hope you can join us: Monday Dec. 29th 4:00pm Adventura Viaje a árbol de Navidad nacional Lunes 29 de diciembre 4:00 PM Please sign up at the front desk ASAP :)!! It is a beautiful tree in DC right by ...

Trip to the National Christmas Tree- Join us Monday!!!

BKuz
  • By BKuz · Posted December 24, 2008
  • Discussion in General · 0 replies
  • Hope you can join us: Monday Dec. 29th 4:00pm Adventura Viaje a árbol de Navidad nacional Lunes 29 de diciembre 4:00 PM Please sign up at the front desk ASAP :)!! It is a beautiful tree in DC right by ...

It's been a while since I last posted

CanadaNuse
  • By CanadaNuse · New reply December 23, 2008
  • Journal · 1 reply
  • Well the year is soon to come to the end, and new year will bring us hope joy, and laughter. We have a lot of things to due before June 2009, that's when Provincial Summer Games are being held in St ...

Periodic Fever Syndrome Conventions?

rybrans07
  • By rybrans07 · New reply December 18, 2008
  • Journal · 6 replies
  • Hi my name is Kim and my daughter Sarah has FMF. I read on someone else's journal that there are Conventions for families dealing with Periodic Fever Syndromes to get together for the weekend. This journal ...

Daughter diagnosed with TRAPS

silky
  • By silky · Posted December 18, 2008
  • Journal · 0 replies
  • My almost 3 year old daughter has been diagnosed with TRAPS R92Q mutation and is being followed by Dr. Kastner ...

Peace to all

spiritual-wellness
  • By spiritual-wellness · Posted December 18, 2008
  • Journal · 0 replies
  • During this holiday season, May hope, peace & joy be with you all. Warmly, Amy Rev. Amy Lewis Spiritual Wellness Coordinator The Children's Inn at NIH 301.443.6671 ...

Why are we here?

Brian
  • By Brian · New reply December 16, 2008
  • Journal · 136 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Learn Inn today

BKuz
  • By BKuz · Posted December 16, 2008
  • Journal · 0 replies
  • 3:30-4:30pm Learn Inn will be early today! Hope to see you there :) Bridget ...

Learn Inn Today

BKuz
  • By BKuz · Posted December 16, 2008
  • Discussion in General · 0 replies
  • 3:30- 4:30pm by the Bistro Learn Inn will be one hour early today! Hope to see you there :)! Bridget ...

Feeling more lost then ever! with medical and education

CanadaNuse
  • By CanadaNuse · New reply December 13, 2008
  • Journal · 3 replies
  • A lot has been happening on the home front. Ash's medical team including mental health are changing her dosage of medications, times given etc. In hopes that the current combination of medications will ...

Hi. My name is Viola Mars. This is my dog blog!

Viola-Mars
  • By Viola-Mars · Posted December 13, 2008
  • Journal · 0 replies
  • I am the new dog-in-residence at The Children's Inn. I am being trained to be a therapy dog so that I can help the families to be happy while they are visiting. I will be posting in this journal once ...

Explore Inn: Story time, cocoa, and crafts

BKuz
  • By BKuz · Posted December 8, 2008
  • Journal · 0 replies
  • Wednesday Dec.10th 4:30pm in the Bistro: What is winter like where you are from? Come share and learn about the season we are in! Stay warm with cocoa while you… Listen to Wintery stories Talk about your ...

Explore Inn:Story Time, cocoa, and crafts

BKuz
  • By BKuz · Posted December 8, 2008
  • Discussion in General · 0 replies
  • Wednesday Dec.10th 4:30pm in the Bistro: What is winter like where you are from? Come share and learn about the season we are in! Stay warm with cocoa while you… Listen to Wintery stories Talk about your ...

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The Children's Inn at NIH Support Community connects patients, families, friends and caregivers for support and inspiration. The Children's Inn at NIH Support Community is sponsored by The Children's Inn at NIH in partnership with Inspire.